Welcome to the Dubowitz Syndrome Support Network
Below you will find a
list of organizations and websites that tend to be family focused and are ready
to help. Just give them a call or email them and tell them where you live
so they can direct you to your local chapter. Most of these organizations
are located within the United States.
Advocacy
Genetics Information
Recreational
Travel (discount or free travel for medical visits/treatments and sometimes conferences)
Wishes (sometimes our children are entitled to wishes)
Miscellaneous/Fun Links
Adobe Acrobat Reader is required to open PDF documents. If you would like to download a free version of Acrobat, click the icon below.
Advocacy
- Wright's Law (legal information, mostly for educational issues)
- Family Voices (grassroots, national family-friendly agency)
- Our Kids (raising children with special needs)
- Family Village (raising children with special needs)
Genetics Information
- The Genetic Alliance
- Adapted Literature and Lessons
- Special Education
- Special Education Resources on the Net (SERI)
- Education World with special ed teaching strategies
- US Department of Education/Special Education
- Learning Strategies
- Council for Exceptional Children
- Help for Schools help with lessons and resources.
- IEP information
- Pacer.org
- IDEA
- Children with LD/Bridging the reading gap with emerging readers
- Rubrics for Teachers
- Jeopardy Games for Teachers tied to curriculum standards
Recreational
- Special Olympics
- Challenger League (free little league program for children with special needs)
- Boys & Girls Clubs (all children welcome, everyone plays)
- Victory Junction (camps for sick children)
- Craft Corner
- More Easy Crafts
Travel (discount or free travel for medical visits/treatments and sometimes conferences)
- Mercy Flights
- Corporate Angels Network uses idle corporate jets to fly families free to medical appointments and treatments.
- DreamLine
- PatientTravel.org
- Angel Flight
- American Airlines 'Miles for Kids' Program (you have to look around on the page for this, but it's there)
Wishes (sometimes our children are entitled to wishes)
Miscellaneous/Fun Links
Adobe Acrobat Reader is required to open PDF documents. If you would like to download a free version of Acrobat, click the icon below.
- CDC's online growth chart
- Care Notebook
- Interactive online colouring book
- Online Colouring Book
- Monk-Email (funny stuff)
- Easy Games for Kids this site is really about English Language Learners, but the games are fun and educational
- Clinical Trials (from the Government/NIH, can search by condition and/or state)
- Intervention Central is strategies for kids with behavioural issues
- Sibling Support Information (from the ARC)
- You know you have a child with special needs .pdf (Humour)
- Social Security criteria for eligibility
- People First (politically correct language for people with disabilities)