Paul V. Sherlock Center on Disabilities
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Rhode Island Health Resources
The Sherlock Center wishes to highlight the following resources available from the State of Rhode Island Department of Health for individuals and families.
If you have difficulties accessing any of the resources or need to know the size of a document before downloading, please contact Deb Golding.
Rhode Island Special Needs Emergency Registry
The Rhode Island Department of Health (HEALTH) and the Rhode Island Emergency Management Agency (RIEMA) have joined together to develop a registry for Rhode Islanders with disabilities, chronic conditions, and other special healthcare needs. This system is designed to identify individuals who require special assistance during emergencies. Enrollment in the Registry does not guarantee assistance, but allows first responders to appropriately plan for, prepare for, and respond to the needs of the community. Learn more…
Living Wills and Power of Attorney
Rhode Islanders have the right to control decisions related to their medical care and to authorize others to make medical decisions for them if they become unable to do so themselves. Living Wills and Power of Attorney are tools that may help with decision making. Learn more and access forms…
Portable Medical Summary (WORD)
The Portable Medical Summary is a useful tool for individuals and families to record medical information in one spot. It is designed for people to carry on their person and provide to caregivers, emergency room personnel, specialist, or when transitioning from pediatric to adult providers.
My Life, My Health Checklists
The Department of Health created a series of health planning tools for individuals and families as they plan their healthcare transition. “Ready, Get Set, Go!” guides are available in English and Spanish.
For print copies, contact Deb Golding, Adolescent Healthcare Transition Coordinator at the Department of Health.
Rhode Island Resource Guide for Families of Children who are Deaf or Hard of Hearing
This guide provides families with current information and resources about health and educational options for children from birth through age 21 who have hearing loss.
Resource Guide for Families of Children with Autism Spectrum Disorders
This guide provides information for families at different stages of the ASD diagnosis process, to assist them in finding help for their children and family support.
Information detailed in this guide includes:
- The signs and symptoms of ASDs and their effect on child development
- Adjusting to your child’s diagnosis
- Health coverage assistance
- Treatments and interventions
- Educational services
- Community resources and other family supports
Español (2006) (PDF)
RI Health Care Survey - Adolescent Health Care Transition in RI
There has been a growing recognition that Health Care Transition (HCT) is a critical aspect of successful entry to adulthood. HCT supports economic self-sufficiency, independence and prevents school dropout and delinquency. As a result, there is an increasing interest in services and supports for young people with disabilities and chronic health conditions that address all aspects of health and well-being, including promoting health, preventing secondary conditions, and preparing for entry into adult systems of care.
In order to complete the picture of knowledge of and attitudes toward HCT, to understand the barriers to addressing HCT, to assess the HCT information and training and to set the direction of HCT work, the Transition Council invites the following groups to complete this survey: Parents, Students, Teachers, School Nurse-Teachers, Special Education Directors, Transition and Care Coordinators (@RIDE, ORS, DCYF, DHS, BHDDH), and other education and health care stakeholders.
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