kids' photo

Welcome to the Dubowitz Syndrome Support Network

Below you will find a list of organizations and websites that tend to be family focused and are ready to help.  Just give them a call or email them and tell them where you live so they can direct you to your local chapter.  Most of these organizations are located within the United States.

Advocacy

Wright's Law (legal information, mostly for educational issues)

Family Voices (grassroots, national family-friendly agency)

Our Kids (raising children with special needs)

Family Village (raising children with special needs)


Genetics Information

The Alliance of Genetic Support Groups


Educational Links

Special Education

Special Education Resources on the Net (SERI)

Education World with special ed teaching strategies

US Department of Education/Special Education

Learning Strategies

Council for Exceptional Children

Help for Schools help with lessons and resources.

IEP information

Pacer.org

IDEA

Children with LD/Bridging the reading gap with emerging readers

Rubrics for Teachers

Jeopardy Games for Teachers tied to curriculum standards


Recreational

Special Olympics

Challenger League (free little league program for children with special needs)

Boys & Girls Clubs (all children welcome, everyone plays)

Victory Junction (camps for sick children)

Craft Corner

More Easy Crafts


Travel (discount or free travel for medical visits/treatments and sometimes conferences)

Mercy Flights

Corporate Angels Network uses idle corporate jets to fly families free to medical appointments and treatments.

DreamLine

PatientTravel.org

Angel Flight

American Airlines 'Miles for Kids' Program (you have to look around on the page for this, but it's there)


Wishes (sometimes our children are entitled to wishes)

Wish Come True

Hugs & Hopes

Make a Wish


Miscellaneous/Fun Links

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CDC's online growth chart

Care Notebook

Interactive online colouring book

Monk-Email (funny stuff)

Easy Games for Kids this site is really about English Language Learners, but the games are fun and educational

Clinical Trials (from the Government/NIH, can search by condition and/or state)

Intervention Central is strategies for kids with behavioural issues

Sibling Support Information (from the ARC)

You know you have a child with special needs .pdf (Humour)

Social Security criteria for eligibility

People First (politically correct language for people with disabilities)


we are NOT responsible for the accuracy of the above translator as it tends to be very 'literal', but it's better than nothing.

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