The people on this page have always been willing to help out and been extremely accessible to families.  The geneticists listed have also been successful in correctly identifying Dubowitz Syndrome in more than one case.  If you have anyone that you would like to add, please drop us an email with the information and why this person should be added.  Out of respect for all of these wonderful people, we ask that you do not ask us for email addresses and contact them either by telephone or US Mail.

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Dr. Stephen Groft, Pharm.D.
Director
Office of Rare Diseases, NIH 
31 Center Drive, Room 1B-19
Bethesda, MD 20892-2084
Phone: 301-435-6041
Fax: 301-402-0420

Dr. Richard Kelley
Director of the Clinical Mass
Spectrometry Laboratory
Kennedy Krieger Institute
707 North Broadway
Suite 500
Baltimore, MD 21205 Phone: (443) 923-2783
Fax: (443) 923-2781

Dr. Gerald Cox
Geneticist
Boston Children's Hospital
300 Longwood Avenue
Boston, MA 02115
Phone: (617) 355-6394
Fax: (617) 355-7588

Dr. John Opitz
Professor of Pediatrics & Human Genetics
University of Utah Medical Center
2C 412 SOM
50 North Medical Drive
Salt Lake City, UT 84132
Phone: (801) 581-8943

Dr. Francis Collins
Director, NIH/Human Genome Research Institute
Building 31, Room 4B09 
31 Center Drive, MSC 2152
9000 Rockville Pike 
Bethesda, MD 20892-2152 
Phone: (301) 402-0911 
Fax: (301) 402-2218 

Dr. Nedda Hobbs
Developmental Pediatrian
Boston Children's Hospital
300 Longwood Avenue
Boston, MA 02115
Phone: (617) 355-6162
Fax: (617) 277-5933

Alexis Poss, MS
Certified Genetic Counselor
Duke University School of Medicine
Department of Pediatrics
Division of Clinical Genetics
Website

Dr. Victor Dubowitz
Professor 
Department of Paediatrics and Neonatal Medicine
Imperial College School of Medicine
Hammersmith Campus 
Du Cane Road
London W12 ONN 
United Kingdom
Phone: 44-20-8383-3295 
Fax: 44-20-883-2473 

we are NOT responsible for the accuracy of the above translator as it tends to be very 'literal', but it's better than nothing.